Saturday, May 7

My TSW Story (Topical Steroid Withdrawl)

I apologise now, this is a rather long one!

 Those of you who know me or follow my social media will probably know that I suffer with eczema, quite badly. I've had it on and off for as long as I can remember but never as bad as it has been over the past year I'd say. It started as little red spots all over my hands which were itchy and got to the point where it was getting red raw and sore and just wouldn't clear up at all. Even when they seemed to be getting better it'd come back just as bad as before. I never thought that I'd find any hope of a cure or something that would clear it up for longer than a week or so. Eczema isn't curable, just treatable, is what I believed for years.

I've used all sorts on my skin, and have done for a long time. I've tried Hydrocortisone, Eumovate, Betnovate, Diprobase (ointment and cream) and yes, they may have all worked, but with the exception of Diprobase, they are all steriod creams. I knew using them was bad for you. I knew it thinned your skin and didn't really help you in the long run. But I didn't know just how bad it can be until I met Nina. She was shopping one day in Leeds and came up to me while I was at work. She asked me loads of questions about my eczema, which by this point was red raw on my hands, and told me about how she had the same but all over her body and that now she's completely clear thanks to not using steroid creams anymore. Her skin looked amazing and it made me want to do the same.

Having eczema had never really bothered me before. I've had it since I was a little girl, and I've never been one for hiding something like that, especially when I had it on my hands, face, arms and legs. But by this point it was stating to become red and sore and I could see people looking at it - not something want when you worked in clothes shop.

My skin would go from red and spotty to dry and tight and then began to spread and become red patches.

At this point I was ready to try anything. Whatever the doctor prescribed me didn't work and they wouldn't refer me to a dermatologist. I got a few things from Nina to try, pure coconut oil was my first point of call which started to work and heal my hands but then made them red and painful again. Over the next few months I tried all sorts including cocoa butter, E45 hand cream, Vaseline, even 'normal' hand cream.

After using coconut oil, it began to clear up...
 
 ... Until it got worse.

 It wasn't until I posted on the TSW Facebook group that I decided to try dead sea salts (I used Himalayan salts) as a few people told me that it had helped them. I'd fill a bowl up with warm water and a good handful of the salts and soak my hands for 20 minutes. It worked amazingly. It took the redness out of my hands by the next morning and then I'd use one of the moisturisers I'd tried to stop them from going dry and itchy. But I still couldn't find a moisturiser that worked really well and that I was happy to stick with.

Let's rewind to my 22nd birthday in October 2015. My boyfriend bought me lots of Lush stuff to try (Lush's products are pretty good when it comes to wanting soft skin) and amongst all of the bubble bars and bath bombs was a Ceridwen's Cauldron. These little bundles of joy are a mesh bag filled with oats and cocoa butter. You can use them as a bath melt or to rub them over your skin. I run them under the shower and rub them on my hands and other areas where I have eczema. They're not good for clearing it up but are so good for getting rid of that morning itch and removing the dead skin.
Anyway, after having some success with these, my boyfriend told me to try using Aveeno cream as it is an oats based moisturiser. I'd heard it mentioned on Facebook so once again I thought there was no harm in trying it. I cannot recommend it enough. It's been amazing and I am still religiously using it to this day. I use it when I get out of the shower and have a little refillable pump in my handbag to use as hand cream during the day. It's really helped to keep it under control.

I also met another girl in work who told me that she had eczema and wore a pure amber bracelet. She said that when she wore it her eczema cleared up and when she didn't it came back. Again, being the open minded person that I am (a.k.a willing to try anything to get rid of my sore hands) I thought I'd buy one and give it a go. I don't believe in crystal healing but the amber is meant to use your body heat to heat up and release succinic acid which is a natural healing agent.

If all else failed, I'd bought a pretty bracelet!

I wore my bracelet  for a month or 2 and I didn't think it was really doing anything. With my salts and aveeno working, I thought that it will have just been those doing the trick. I took it off to get in the shower one day and decided not to put it back on. After a week or so my hands were beginning to get really sore again and it wasn't until one evening I twigged that I'd taken my bracelet off. Still not really believing in the healing properties I put my bracelet back on and after a few days my hands were beginning to feel better.

I started my TSW journey in November 2015. In the past 6 months I've tried a lot of things and it's definitely got worse before it's got better. But my skin, now, feels amazing. I'm still not 100% there but it is better than is had been in a long time. And the initial pain, your skin craving the steroids, is worth it!


For anyone who feels the same, I definitely recommend trying different things, hopefully I've helped you a little bit. The Facebook group is amazing too; there's so many people on there sharing stories and will help you if you feel stuck. Everyone's skin is different and hearing what different people have used gives you a lot of options and support knowing that it will get better.

I know I haven't had the worst time going through this, and I'm so grateful for that, and I've had a speedy recovery but it just shows what coming off of the steroid creams can actually achieve!

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